Star Williams will never forget the day her daughter Karma was born.
"She was like a perfect baby as any other perfect baby," said Williams.
But about a month later, Williams says that all changed.
"She stopped breathing while having a seizure and her lips turned purple," said Williams.
It took more than a year and a half, and several hospital stays later, for them to get an answer.
"They just identified a gene. The PIGG gene," said Williams
A mutation of the PIGG gene has left Karma struggling with seizures, developmental delays, a weakened G.I. Tract and more.
Wiliiams says doctors don't have a treatment plan, because of how rare the disorder is and because it normally leads to death at an early age.
"I've already accepted that I am going to bury my baby," said Williams.
Karma, who is now three-years-old, is receiving hospice care at home and being fed through a tube.
Her mother says right now what they need most is breast milk to help feed her.
According to Star it's one of the few things that her body tolerates well.
"She has a lot of allergies and food sensitivities," said Williams.
Because of those allergies, she's asking for donations from moms who are vegan and don't eat soy.
She says any donations will go a long way for little Karma.
"As long as she has breath, there's still hope," said Williams.
If you want to donate to Karma, Williams says the best way to contact her is through a Facebook message.
Click here to access her page.
You can also call this number 239-248-2487 to schedule a milk drop-off or donation.
